The Flicker of Hope Foundation has been established to raise much needed funds for research into Neurofibromatosis.

Flicker of Hope welcomes input and suggestions for research about NF1.  Applications for our twice yearly funding rounds are invited from all organisations.

Every dollar you commit will shine a flicker of hope.

The Flicker of Hope Foundation has raised over $600,000 in just two years.  100%* of this amount will be used to fund essential research into NF.

 

Flicker of Hope is currently funding the following projects:

 

TiNT trial – a trial of trametinib in children and adolescents with NF1 to treat plexiform neurofibromas and optic pathway gliomas.  This research is being conducted by the Murdoch Children’s Research Institute.

 

ctDNA NF1 project – a project to explore the feasibility of early detection of Malignant Peripheral Nerve Sheath Tumours (MPNSTs) using a blood test.  Partnering in this project are The Royal Children’s Hospital, The Royal Melbourne Hospital and Peter MacCallum Cancer Centre.

 

*Flicker of Hope operates on a no cost basis.  There are no staff, administrative or overhead costs. Please see our FAQ for further information.

Will you help Flicker of Hope shine a light on NF? All donations are tax deductible and 100%* of your donation is directed towards research.

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WHAT IS NEUROFIBROMATOSIS?

Neurofibromatosis (NF) is a genetic disorder that most people have never heard of. There are three types of NF: NF1, NF2 and Schwannomatosis.

 

It is estimated that 1 in 2,500 people have NF1 – affecting approximately 10,000 Australians and 2,500,00 people worldwide.

 

NF2 and Schwannomatosis are much rarer conditions.  Estimates are that NF2 affects approximately one person per 33,000 people worldwide. Schwannomatosis is the least common and most recently identified form of neurofibromatosis, with estimates of occurrence ranging from one in 40,000 people to one in 1.7 million people.

 

Approximately 50% of NF sufferers inherit the disorder from their parents. Others show no family history of NF, meaning it has occurred spontaneously at the time of conception. Anyone suffering from Neurofibromatosis has a one-in-two chance of passing the condition onto their own children.

 

Neurofibromatosis causes tumours to grow on nerve endings throughout the body. It can affect major organs and lead to a variety of serious and debilitating health issues including cafe au lait spots, blindness, bone abnormalities, disfigurement, chronic pain, amputation, cancer, epilepsy, learning difficulties and autism.

 

Knowledge of NF is incredibly limited – research is needed to learn more about the condition and explore effective treatment options.

 

The Flicker of Hope Foundation has been established to raise much needed funds to ensure NF research can continue.

One of the biggest things that Neurofibromatosis can lead to is fear. The pathway for each person is both different and unpredictable. Fear of what may happen is significant.

HOW CAN YOU HELP?

100%* of funds raised by Flicker of Hope will help shine a light on NF, and will directly fund meaningful research into NF.

 

With your help we can continue to raise awareness of NF, bring hope to those living with NF, and brighten the future for all affected by NF.

Together we can help fund research, enabling better understanding to help find an effective treatment for NF.

 

Thanks to the generous support of individuals, businesses, community and school groups, Flicker of Hope has raised over $600,000 in two years.

100% of this amount has been donated to fund essential research into NF.

 

Please join us on this journey – a journey that may be life changing for those impacted by NF.

 

*Flicker of Hope operates on a no cost basis.  There are no staff, administrative or overhead costs.  Please see our FAQ for further information,

 

Are you a dreamer?

Help us to shine a flicker of hope and brighten the future for those living with NF.

Together, we can make a difference.

DONATE NOW

ABOUT

The Flicker of Hope Foundation has been inspired by Zoe – who was diagnosed with NF at 4 months of age.

 

Zoe loves to dream big … and she dreams of a bright future for all those affected by NF.

 

In 2018  Zoe and her family established The Flicker of Hope Foundation to raise much needed funds to support researchers in their quest to find positive treatments and improve the quality of life for those impacted by NF.

 

 

Zoe-About-Web

APPLICATION FOR RESEARCH FUNDING

Flicker of Hope welcomes input and suggestions for research about NF1.  Applications for our twice yearly funding rounds in April and October are invited from all organisations.

Please email your research proposal to info@flickerofhope.org.au. Proposals should be no more than 400 words in plain language.

EVENTS

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WIN AN MG3 AND KICK BUTT FOR NF RESEARCH!

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KICKING BUTT FOR NF RESEARCH!

Free family friendly event featuring 16 AFL greats!  Thursday April 15, 2021 4pm at Port Melbourne Football Club

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HELP TO DECORATE THE FLICKER OF HOPE CHRISTMAS TREE!

  Shine a Flicker of Hope this Christmas and help us decorate our Christmas Tree!

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